Table 3 Final 17-item Adherence Barriers Questionnaire for IVT (translated to English)
From: Questionnaire for the assessment of adherence barriers of intravitreal therapy: the ABQ-IVT
N | Item phrasing | Abbreviation |
|---|---|---|
1 | "I generally feel well informed about the treatment of my eye disease" | ‘Information’ |
3 | "I trust my eye doctor(s)" | ‘Trust in physician’ |
4 | "My eye doctor includes me in decisions about the course of treatment" | ‘Shared decision making’ |
6 | "I often feel uncomfortable in the doctor's office | ‘Discomfort in doctor's office’ |
7 | "Sometimes I am unsure whether the eye injections are indeed necessary" | ‘Belief in need of therapy’ |
10 | "I am dissatisfied with my current care/treatment" | ‘Unsatisfaction’ |
12 | "Generally, I often feel downcast and sometimes discouraged and depressed" | ‘Depression’ |
14 | "My injection treatments are tied to substantial costs for me" | ‘Cost of treatment’ |
15 | "I am afraid of the IV treatments and/or the side effects" | ‘Side effects’ |
17 | "Attending eye doctor appointments poses a high time burden (journey/waiting times) for me and/or my relatives" | ‘Time commitment’ |
18 | "Attending eye doctor appointments poses a high financial burden (e.g. travel costs/absenteeism) for me and/or my relatives" | ‘Travel/opportunity costs’ |
19 | "Especially doctor's appointments which require an accompanying person pose a challenge" | ‘Challenge accompanying person’ |
20 | "I am worried about being a burden to my family/relatives and to have to ask for help" | ‘Burden for family members’ |
21 | "I would need help on a daily basis (particularly in context of healthcare). However, I do not receive any" | ‘Lack of support’ |
22 | "Apart from my eye condition I experience other conditions which hampers my attendance to appointments" | ‘Comorbidity’ |
23 | "I have private/professional duties which are hardly compatible with the treatment of my eye disease" | ‘Private/professional obligations’ |
24 | "Due to my old age, I am unsure whether the efforts associated with my IV treatment are worth it" | ‘Too old for therapy to be worthwhile’ |